Being a caregiver for a loved one with dementia is one of the most heart-stretching, patience-testing, soul-deep things a person can do. While others might sympathize, there are some truths only fellow dementia caregivers really understand.
Here are 10 moments, feelings, and frustrations that might just have you nodding your head and whispering, “Yep, that’s me.”
1. Why Won’t They Take a Shower?!
Why Won’t Your Alzheimer’s or Dementia Parent Take Showers?
You’ve begged, bribed, and scheduled—but bathing still feels like a battle. This post dives into why showers can feel threatening for dementia patients and how to gently encourage them without power struggles.
2. The Repeating Questions Can Break You
5 Ways to Cope With Repetitive Dementia Questions
If you’ve answered “What time is dinner?” for the 37th time today, you are not alone. This piece offers kind, practical strategies to stay calm (and keep your own sanity intact).
3. They Keep Telling Stories That Aren’t True
Why Do Dementia and Alzheimer’s People Make Up Stories?
When your loved one starts telling tales from an alternate reality, it can be jarring. Here’s why it happens—and why correcting them might do more harm than good.
4. You’ve Told a “Loving Lie” (and Felt Torn About It)
Dealing With Lying to Your Dementia or Alzheimer’s Loved One
Whether it’s saying the doctor is on their way or that their car is in the shop, sometimes white lies are part of love. This article explores the guilt—and grace—in telling them.
5. Your Heart Shatters When They Ask to “Go Home”
What To Do When Your Dementia Parent Wants to “Go Home”
That heartbreaking phrase can stop you in your tracks. This post explores what they really mean and how to respond in a way that soothes rather than stings.
6. Dementia Burnout is Real (and It’s Not Just “Being Tired”)
23 Fun Ways to Battle Dementia and Alzheimer’s Caregiver Burnout
Burnout isn’t just about needing a nap—it’s feeling drained, resentful, guilty. This post has lighthearted, realistic ideas to refill your cup.
7. You’ve Been Called a “Yeller” Even When You Weren’t
5 Things to Try When Your Loved One Says You’re Always “Yelling”
Dementia distorts perception. What sounds normal to you might feel loud to them. This post gives gentle tips for managing tone and emotional triggers on both sides.
8. You See Signs of PTSD in Yourself
Dementia Caregiver PTSD… It’s a Real Thing!
Flashbacks. Emotional numbness. Anxiety. You’re not imagining it. This post offers validation and insight for caregivers who are experiencing trauma after or during the journey.
9. Their Hoarding Isn’t Just “Being Messy”
Why Won’t Your Alzheimer or Dementia Parent Throw Anything Away?
Stacks of papers, boxes of junk mail—it’s overwhelming and emotional. This piece explores why hoarding happens and how to deal with it without causing distress.
10. Sometimes, You Just Want Someone to Say, “You’re Doing a Great Job.”
15 Tips For New Alzheimer Caregivers
This one’s a must-read for new and seasoned caregivers alike. Full of compassion, encouragement, and hard-won advice, it’s the virtual hug you might need today.
You are not alone, and your love matters more than you know! Whether you're just starting or deep in the trenches, these moments are part of the incredibly brave journey you're on. Bookmark this page. Share it with someone who needs to hear it. And always—be gentle with yourself.